Friday, December 14, 2012

Home for Christmas!

I'm sure you are surprised to hear that we are home for Christmas! I'm also sure you're wondering why...

The culture that they are growing can sometimes takes many days or weeks to grow out, so rather then us sit there waiting for it to grow, the transplant coordinator suggested we go home for the Holidays and we would see what happens with the culture in the mean-time. I was very disappointed to hear this because it's more time I have to wait for lungs, but excited too, to be home for the Holidays!

We packed yesterday and packed some more today and drove home. Marsha has been such a trooper and packed the whole car herself. She had one large suitcase and I had the trunk full and most of the back seat full! I'm looking forward to the day when I can just pack a suitcase and go without taking nebulizers, portable oxygen tanks, my vest, cannula's, tubing, etc.!

The hotel said they would forward any mail to us, so if you happened to mail anything, we will get it eventually.

I will update my blog as I have information. If I don't happen to update it before Christmas, I hope you all have a joyful Christmas!

Love and hugs,

Wednesday, December 12, 2012

"On hold" and bummed

Today I was told by the transplant coordinator that a sputum sample I gave them a few days ago showed something that they can't quite identify. She said I would need to give them one more sample tomorrow morning and they will run a test to see what the new bacteria/infection in my lungs is and what antibiotics it is sensitive to. When I get new lungs (God willing), they will want to treat me with appropriate antibiotics in case any of the stuff I currently have is still in the airways, sinus', etc. so it doesn't infect the new lungs--or at least this is how I understand it...In the meantime, she said I'm "on hold" and won't get calls for lungs until they know what I have and how to treat it. I understand that this all has to happen this way, but I'm just bummed.

To add to all of this, I have been having more days lately where it is very apparent that new lungs are necessary, so I think this has contributed to my mood too.

After beating Marsha in a few games of Canasta this evening (lol) and some sleep tonight, I should have better spirits tomorrow!   

My prayer request is that this new "friend" in my lungs is not a deal-breaker for me getting a transplant. I really don't think this is the case and that transplant coordinator didn't indicate this whatsoever, but it sure can't hurt to cover this scenario in prayer.

Thank you for checking in and for the thoughts and prayers.

Saturday, December 8, 2012


Don't panic--I didn't get the call yet! lol  I have had a few requests for my address, so I have added it to the "about me" section (left side of my blog).

Have a great weekend! 

Wednesday, December 5, 2012

It's Official!

I got the call from the lung transplant coordinator approx an hour ago and they have officially listed me! I could get the call tonight, tomorrow, in a week, or in a few months! I'm excited and nervous both. 
Please lift me up in prayer for peace. I will be on pins and needles every time the phone rings for the next day or two.  I will update here when I get the call.

God Bless,